News

At Cure-CMT, we're on a mission to make an immediate impact on the lives of people living with CMT. Through strategic investments and partnerships with scientists, medical experts, industry leaders, and the CMT community, we're driving innovation and pushing promising technology forward at an unprecedented pace. Since our inception, we've been executing on our mission by providing direct funding for braces and surgery so people can move with confidence, reduce pain, and regain independence. We've also made strategic philanthropic investments…

Pat Livney, founder and CEO of Cure CMT, recently addressed the 2025 CMT Patient Meeting in Beijing, announcing exciting plans to launch clinical trials in China next year and bringing hope to the growing community of Charcot-Marie-Tooth disease patients in the region. The meeting, themed "Creating Hope, Embracing the Future," was organized by Qianlixing CMT Support Home, a prominent Chinese patient organization that has been instrumental in supporting CMT patients across China. The event brought together doctors, patients, and researchers…

NAPERVILLE, IL – The annual Cure-CMT Golf Challenge held at Merit Club on August 18, 2025, exceeded all expectations, raising more than $200,000 to fund critical bracing and surgical treatments for individuals living with Charcot-Marie-Tooth disease. Perfect weather set the stage for a day of friendly competition, networking, and community support as golfers came together for this vital cause. The funds raised will directly impact patients' lives by providing access to essential medical care and mobility assistance.     Tournament Champions…

Patrick Livney, CEO and Chairman of Cure CMT, tells Shaun Thompson about his life with Charcot-Marie-Tooth Disease, how golf saved him, and how he continues to help the next generation of CMT patients. https://omny.fm/shows/the-liberty-hour/patrick-livney