News

Pat Livney, founder and CEO of Cure CMT, recently addressed the 2025 CMT Patient Meeting in Beijing, announcing exciting plans to launch clinical trials in China next year and bringing hope to the growing community of Charcot-Marie-Tooth disease patients in the region. The meeting, themed "Creating Hope, Embracing the Future," was organized by Qianlixing CMT Support Home, a prominent Chinese patient organization that has been instrumental in supporting CMT patients across China. The event brought together doctors, patients, and researchers…

NAPERVILLE, IL – The annual Cure-CMT Golf Challenge held at Merit Club on August 18, 2025, exceeded all expectations, raising more than $200,000 to fund critical bracing and surgical treatments for individuals living with Charcot-Marie-Tooth disease. Perfect weather set the stage for a day of friendly competition, networking, and community support as golfers came together for this vital cause. The funds raised will directly impact patients' lives by providing access to essential medical care and mobility assistance.     Tournament Champions…

Patrick Livney, CEO and Chairman of Cure CMT, tells Shaun Thompson about his life with Charcot-Marie-Tooth Disease, how golf saved him, and how he continues to help the next generation of CMT patients. https://omny.fm/shows/the-liberty-hour/patrick-livney

Dan Proft used his Chicago’s Morning Answer program to spotlight Charcot-Marie-Tooth disease (CMT), a progressive genetic nerve disorder that affects roughly one in 2,500 people. The segment, tied to an upcoming charity golf outing at the Merit Club in Libertyville, featured Cure CMT founder Patrick Livney, who has lived with the condition since his teens. CMT is named for the three doctors who first described it in the late 1800s. It impacts the peripheral nerves that control movement and sensation…